#TBI: How do Traumatic Brain Injury communities communicate and network in Twitter?

Standard
mbrunner_assbi-2017-hashtag-tbi_poster-v3.png
Poster presentation at ASSBI, 1-3 June 2017.

Twitter is used by millions of people worldwide as a micro-blogging social networking site. We don’t have much information on how people with traumatic brain injury (TBI) use Twitter or who they connect with. This study looked at TBI-related tweets to get an understanding of how Twitter is being used to share information about TBI.

Tweets that were tagged with TBI-related terms (#hashtags) were captured in Twitter every day for one month (March 2016) and then analysed using multiple methods.

tweets captured

In March 2016, thousands of TBI-related tweets were used to discuss and share information around: (i) health issues; (ii) awareness; (iii) life experiences after TBI; (iv) recovery and rehabilitation; (v) popular issues surrounding sport and TBI; and (vi) inspiration.

Key Findings:

  • Twitter is used for a variety of purposes and by a large number of Twitter users to talk about TBI
  • Several people who were tweeting shared that they had a TBI
  • Twitter is an important yet under‐utilised form of communication technology in TBI rehabilitation
  • Using Twitter could help people with TBI to find information about TBI
  • Using Twitter could help people with TBI connect with other people with TBI online.

Topic categories of what was said in the tweets

categories

Listening to the personal stories and inspirational tweets by people with TBI could be useful in understanding their experiences and views of living with TBI. This could help to (a) guide conversations to develop person‐centred rehabilitation goals; or (b) stimulate further discussions on ‘living well with TBI’.

Reading tweets tagged with #TBI‐related hashtags could give clinicians and researchers insight into the lived experiences of people with a TBI, as well as the opportunity to engage with a wide TBI community in research and knowledge translation.

Further research is needed to determine the experiences and views of people with TBI using Twitter, to identify and supports that need to be provided for people with TBI to engage in Twitter communities.

Read the full article (Brunner M, Hemsley B, Dann S, Togher L, Palmer S (2018). Hashtag #TBI: A content and network data analysis of tweets about Traumatic Brain Injury. Brain Injury, 32(1), 49-63).

abstract

This research was presented at international and national conferences in 2017:

  • Brunner M, Hemsley B, Togher L, Dann S, Palmer S (2017). #Hashtag TBI: Communication and networking in Twitter by Traumatic Brain Injury communities. Datablitz oral and poster presentation at the Australasian Society for the Study of Brain Impairment (ASSBI) Conference, 1-3 June 2017, Melbourne, Australia.
  • Brunner M, Hemsley B, Togher L, Dann S, Palmer S (2017). A Hashtag Study: How do Traumatic Brain Injury communities communicate and network in Twitter? Oral Presentation at the Speech Pathology Australia National Conference, 28-31 May 2017, Sydney, Australia.
  • Brunner M, Hemsley B, Togher L, Dann S, Palmer S (2017). Hashtag TBI: How do Traumatic Brain Injury communities communicate and network in Twitter? Oral presentation at the International Cognitive-Communication Disorders Conference, 19-21 January 2017, Orange California, USA. SlideShare
Advertisements